INFORMATION. SUPPORT. RESEARCH. HOPE.
Living with hydrocephalus comes with questions. We’re here for all of them.
Whether you are facing a new diagnosis, managing lifelong care, or supporting someone you love, HA connects you with trusted information, people who understand, and research moving care forward.
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What can we help you find?
Search more than a thousand HA articles, guides, videos and programs.
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Information for you
Guidance for where you are in life.
Choose a group below to find guidance and support.
Parents & FamiliesFrom diagnosis through school, treatment, and daily life.Explore your path
Teens & Young AdultsBuild confidence, independence, and connection.Explore your path
AdultsNavigate care, symptoms, work, relationships, and life.Explore your path
People Living with NPHUnderstand symptoms, diagnosis, treatment, and support.Explore your path
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Understand hydrocephalus and your care.
Learn about hydrocephalus, treatment, daily life, and research.
Understand hydrocephalus
Hydrocephalus basicsTreatment & care
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Living with hydrocephalusResearch & progress
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Ways HA can help
Real support, right when you need it.
Whether you need answers, financial help, a specialist, or someone who understands, HA can help you find your next step.
Helpline: personal guidance and trusted resources
Staff who listen and can help. It’s why we’re here.
Call or email for support, resources, and answers to your questions.
- Peer SupportTalk by phone or email with trained volunteers who have been coping with hydrocephalus too.
- Community NetworksLocal support, education, and empowerment, in person and online.
- HydroAssist®: Mobile AppStore your treatment history, track symptoms, and keep scans and other important health information in one place.
- Find a DoctorSearch the HA physician directory by state, age group, specialty and distance.
Find HA near you
Everything near you, in one place.
Conferences, WALKs, races, education days and support groups. Search by ZIP code or state, or choose a state on the map.
Something in personWALKOnline meetups are open to every state.
Near you
Texas
1. HA CONNECT, our national conference
Open to every state. More than 600 people came to HA CONNECT 2026.
About HA CONNECT2. WALK to End Hydrocephalus
3. HA Endurance Team
No team race in Texas. You can run any race for HA.
Join the Endurance Team4. Education Days
HA holds educational events in select cities. None are listed for Texas right now.
Local educational events5. Community Networks and meetups
- Austin (Online)
- Dallas (Pediatric & Adult)
- Dallas (NPH)
- Houston
- Midland
- Oct 14: Grupo de Habla Hispana, 7-8 pm ET
- Oct 15: Homeschool Connections: Supporting Every Learner, Every Family, 3-4 pm ET
RESEARCH CAN CHANGE WHAT COMES NEXT
People with hydrocephalus deserve more than a lifetime of uncertainty.
HA funds research to bring people and families better answers, safer treatments, and real hope for the future.
Explore all research and impact- invested directly by HA in research
- $17M+invested directly by HA in research
- in additional grants secured by HA-funded researchers and clinical networks
- $95Min additional grants secured by HA-funded researchers and clinical networks
- fewer shunt infections, from HA-funded clinical networks
- 36%fewer shunt infections, from HA-funded clinical networks
- research awards granted since 2009
- 169research awards granted since 2009
OUR STRATEGY
- 1Align research with community priorities
- 2Grow the research ecosystem
- 3Strengthen multidisciplinary partnerships
Connect and learn
Programs & upcoming events
- Local connectionWALK to End HydrocephalusJoin a local community coming together for support, awareness, and research.Find a WALK near you
- EducationFree WebinarsHear practical guidance and current medical information directly from trusted experts.View free webinars
- CommunityCommunity NetworksConnect with people who understand, in person and through virtual meetups.Join a Community Network
Coming up
- Oct14Grupo de Habla HispanaOnline, 7-8 pm ET
- Oct15Homeschool Connections: Supporting Every Learner, Every FamilyOnline, 3-4 pm ET
- Oct15Supportive Families Embracing Disability JourneysOnline, 7-8 pm ET
- Oct17Houston WALK to End HydrocephalusWALK, Helix Park
- Oct17Alabama WALK to End HydrocephalusWALK, Legacy Park
Our enduring commitment
1983
Founded by parents of children with hydrocephalus
Beside the hydrocephalus community for more than four decades.
HA has helped families find answers, built connections across the community, advanced research, and advocated for better care. That history guides what comes next.
Learn about the Hydrocephalus AssociationStories & updates
Knowledge you can use. Voices you can trust.
Community storyParents & Families“Myles is now three and a half years old, and he is finally walking… well, running!”Written by his mom. Myles spent 44 days in the NICU.Read Myles’s storyArticleNewly diagnosedNewly diagnosed: what to do nextPractical first steps to help you organize information, ask questions, and find support.Get newly diagnosed guidanceArticleYour carePreparing for a doctor visitMake a list of questions and make the most of your time with your care team.Read the articleYOU CAN CHANGE WHAT COMES NEXT
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